Vondt å se barn som er syke - SBG combined with cancer vaccine

Slettet bruker
29.04.2019 kl 01:29 986


Hi all! We are Leanne and James, Ava’s mum and dad.



Firstly, thank you so much for taking the time to read Ava’s story. We never thought we would be in the position of asking for support from total strangers, but we are so thankful you might want to help us to save our little girl.

In April of this year, just after her second birthday, our precious Ava Bear started acting strangely. We took her for tests and on 7th April, we got the worst news of our lives: she was diagnosed with Stage 4 High Risk Neuroblastoma, a very rare and aggressive childhood cancer. Leanne was pregnant. Our perfect world fell apart.

Since then, Ava has gone through multiple operations and tests and spends more time in hospital than out. Our little fighter has completed her 8th round of chemo now, and it is unspeakably hard to see how sick it makes her. Even once she is in remission, there is a one in two chance of relapse. One in two.

BUT THERE IS HOPE! Her best chance is a lifesaving vaccine only available from Memorial Sloan Kettering Hospital in New York City.

This incredible trial vaccine has been shown to PREVENT RELAPSE in cases like Ava’s-- we cannot let her go through all this chemo and then relapse! That is not an option.

But we were stunned and horrified to learn that the vaccine and associated costs are estimated at a shocking $350,000 AUD.

We will also have to temporarily relocate to the States for her treatment, but we will do whatever it takes. Her baby brother Angus was also born mid-September 2018, adding much joy but also complication to an already hectic life

We don’t have assets we can sell off. Leanne is working full-time alongside raising a newborn and a sick toddler, and we save all we can. We don’t like to ask for help, but we have no choice, and we are determined to raise the money for our baby girl. This is the purpose of this fundraising page.

We ask for the help of others to help save our little girl and give her the gift that all of us have and want for our own children - the gift of a happy life. There is no price you can put on your child living past the age of five.

From the bottom of our hearts, THANKYOU for caring about Ava and sharing her story. Your support could be lifesaving.


Any questions you may have, please inbox us on this page or contact me directly.





https://www.gofundme.com/jupcnf-avas-journey



www.avasjourney.com.au

Facebook: https://www.facebook.com/Avasneuroblastomajourney/

Instagram https://www.instagram.com/leeleeloves12/

Phase 2 trial - https://clinicaltrials.gov/ct2/show/NCT00911560

https://www.mskcc.org/pediatrics/cancer-care/types/neuroblastoma







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https://solublebetaglucan.com/vaccine-adjuvant/

https://biotec.no/news/results-from-neuroblastoma-phase-ii-vaccine-study-indicate-promising-adjuvant-sbg-effect/

Redigert 21.01.2021 kl 07:08 Du må logge inn for å svare
hovtor
29.04.2019 kl 07:57 897

Antar at dette innlegget bør ha en "Biotec"-ticker ?
Redigert 21.01.2021 kl 07:08 Du må logge inn for å svare
Snart.
29.04.2019 kl 22:39 802



Phase 2 trial - https://clinicaltrials.gov/ct2/show/NCT00911560
Redigert 21.01.2021 kl 07:08 Du må logge inn for å svare